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Annual DART to the Finish charity walk
September 25 @ 8:00 am - 5:00 pm
4th Annual DART to the Finish Charity Walk on September 25Walk Around Greenwich Point Park Raises Funds for Rare Childhood Disease NPR – Often Called Children’s Alzheimer’sWHO: The fourth annual DART to the Finish charity walk to benefit Dana’s Angels Research Trust (DART) is scheduled for Saturday, September 25, 2021, and will be held in-person at Greenwich Point Park and virtually anywhere else in the world. DART is a Greenwich, Connecticut-based nonprofit that funds research for the rare childhood disease, Niemann-Pick type C (NPC), which is often referred to as children’s Alzheimer’s. Registration (which is a tax-deductible donation to DART) is $25 for adults and $10 for children ages 10 to 21 years of age. Registered walkers receive a DART to the Finish t-shirt and are eligible for gift certificate rewards when they refer other friends and family members to sign up. To learn more and register, visit danasangels.org or dartevents.org. Registration can also be made on-site Saturday morning.Dana’s Angels Research Trust was founded by Andrea and Phil Marella after two of their four children, Dana and Andrew, were diagnosed with Niemann-Pick type C disease (NPC). Dana sadly passed away in 2013 at age 19. But Andrew, who turned 22 in June, is doing better due to being enrolled in a clinical trial to slow the progression of the disease.WHAT: The DART to the Finish charity walk is a 2-mile family-friendly walk around beautiful Greenwich Point Park. All ages are welcome and the walk is stroller-friendly and handicap accessible.WHEN: 8:00 a.m. (ET), Saturday, September 25, 2021WHERE: Greenwich Point ParkTod’s Driftway, Old Greenwich, CT*Note: Entrance to Greenwich Point Park and parking is free for all DART to the Finish participantsWHY: The need for funding crucial NPC treatments and research has never been more important than it is today, DART has been instrumental in being part of an NPC Therapy Accelerator program supporting the work of more than 12 companies currently developing treatments for the disease, two of which are in the later stages of regulatory review with the FDA. NPC is so rare that only about 200 children in the U.S. have been diagnosed with the disease. and only a few, including Andrew, live in Connecticut. This devastating genetic disorder robs a child of the ability to live a long, healthy life, often becoming fatal in the teenage years. But, DART is helping to change that fate. As a nonprofit organization, DART’s events like DART to the Finish, help raise funds to support pivotal NPC research — research that may also help millions suffering from Parkinson’s disease, HIV/Aids, Ebola, heart disease, stroke, Alzheimer’s disease and other disorders that appear to be related to cholesterol. To date, DART has raised $5.5 million that has gone toward the search for a better treatment and ultimately a cure for NPC. DART is particularly proud of its commitment as a founding member of a unique, collaborative drug development program called SOAR-NPC or Support Of Accelerated Research. Working with other NPC families and research institutions, SOAR’s collaborators have four clinical trials already to their credit.To learn more about Dana’s Angels Research Trust (DART) or to register for the DART to The Finish Walk, visit dartevents.org. To learn more about Dana’s Angels Research Trust (DART), visit danasangels.org, on Facebook @danasangels, Instagram @danasangelsNPC and Twitter @danasangels.CONTACT: Jenifer Howard | 203-273-4246 (mobile/text)